Many of you have been donating and fundraising ever since they heard about Oisin’s DIPG diagnosis. We are very pleased to announce that we have partnered up with Brain Tumour Ireland and sent the majority the money we received directly to them. We have a good relationship with the founders of the charity, who are family people that were directly affected by the loss of a loved one to a brain tumour. We consult with Brain Tumour Ireland on where the money will go and both Barry and I have many ideas for the future. We want the donations to be directed into research and well-being. On the research front we are currently funding a biobank facility of human brain tumour biopsies, which will set the foundation for Irish researchers to investigate and collaborate with international researchers.
Please keep checking the Brain Tumour Ireland website for fundraising events and contact details. You may also contact us with any ideas you have.
Other organisations that have benefited from money raised have been:
- Make a Wish Foundation
- Enable Ireland (Bray and Naas Centres directly)
- Irish Cancer Society
- St Brigid’s Hospice (where Oisin received the most incredible palliative care)
- St. Vincent De Paul
- Laura Lynn Children’s HospiceLaura Lynn Children’s Hospice
- Abbie’s Army, UK
- Lyla Nsouli Foundation, UK
Money was also put into our personal campaign to make everyday beautiful for Oisin although most of this turned out to be free. This is thanks to friends and strangers alike who simply wanted to play a part in seeing a big smile on Oisin’s face. As a result of your generosity and compassion, he met firefighters who drove him around in a real fire engine, went flying the skies in a private plane, partied with his closest friends, laughed his way through Reuben’s show, was dazzled by magicians, came up close and personal with reptiles, cuddled up to Mickey Mouse, met Lightening McQueen, dug big holes in the ground in a JCB, sped around a race track, went hunting through a wood for pumpkins, and opened a new parcel almost every day… you name it he did it! You made it all possible and he most certainly did have a beautiful day EVERY day even up until his final day.
Sheila and Barry xx