Help and Support

This is a section contains help and resources for other families who are going through a similar experience to ours. It is also a resource for people who are wanting to connect more with their own suffering. I think there will be something in it that will catch the interest of nearly every reader. There will be links to various charities, organisations, therapeutic support, books, articles, web sites. Please feel free to send me more links and info that I can post up here for others to benefit from.

Thanks, Sheila x

 

 

 

 

13 Responses to Help and Support

  1. Louise Dickson says:

    I’m going ‘sober in October’ for Luke’s Life Legacy https://www.facebook.com/LukesLLLabour?ref=ts&fref=ts
    Sheila I’ll also suggest you like the page on Facebook xxx

    Like

  2. Polly says:

    Oisin’s story reminded me of another young man I know of whose family continue to “find the wonderful in today” … http://charliecodling.co.uk/ https://www.facebook.com/charlie.codling.9

    Liked by 1 person

  3. Brian says:

    Hi my daughter heather has DIPG 28OCT13. We did the radiation and PBTC #33 we are off the clinical trial…Check out Serafin Healthy Living on Facebook. Prayers to Oisin and Family

    Liked by 1 person

  4. Julie Meehan says:

    Thank you sincerely for sharing these resources Sheils – and for all your posts, full of life, colour and Bolandness 🙂

    Books for Children
    Each Breath A Smile by Thich Nhat Hahn (words by Sister Susan) is a very simple introductory book to mindfulness for young children.
    Buddha at Bedtime by Dharmachari Nagaraja is a beautiful book for children. It includes a Metta/Loving Kindness meditation that you can do with the smallees and gorgeous stories based on compassion and wisdom
    Lillibit’s Dream written by Melody Sullivan and illustrated by Stanislav Grof http://lillibitsdream.com/ – a tale of metamorphosis and rebirth ( apparently it has always been Stan’s dream to be an animator/ illustrator, which he fulfilled here :))

    Articles
    http://www.stanislavgrof.com/pdf/Death%20and%20Dying.pdf – I haven’t read this but given our shared love of Stan’s writing it may be one to engage with

    Books
    The Ultimate Journey: Consciousness and the Mystery of Death: Stanislav Grof

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    • Great recommendations, Julie. I am listening to Stan reading Lillibit’s Dream right now. It’s just exactly how I have planned to say things to Oisin and have been saying to him along the way as and when it feels right. Cilly too. I bought nothing short of a small library of books last week and now I have some welcome additions. Hope they are of help to others. I will reblog on my help and support page. x

      Like

  5. Julie Meehan says:

    Fly Lilibet, Fly xx

    Liked by 1 person

  6. Julie Meehan says:

    On the topic of mantras, I enjoyed reading this piece by Ram Dass xx
    https://www.ramdass.org/mantras-2/

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  7. Julie Meehan says:

    Sheila, this piece, also by Ram Dass may resonate
    https://www.ramdass.org/learning-grieve/
    Love and Light

    Like

  8. Rozanne says:

    My heart breaks for you and your family , but Oisin is so lucky to have the parents he does . You are and have been in my and my family’s thoughts . X

    Like

  9. Sue says:

    Sending prayers to all. Has anyone tried cannabis for pain control? Has helped a friends child.

    Like

  10. Luiza says:

    We were just told yesterday that our 3 year old daughter have DIPG.I read your blog becouse i need to know that there is life after loss…

    Like

    • Please always know you have support. You can contact me at any time. Sending you love. My heart reaches out to you reading your message. I will never forget the news. Its traumatic and something beyond words. Life changed in that moment. Yes it breaks the heart and let it. Be with your pain. Feel it fully. You have permission to be with all you experience.

      Like

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